DEI Equity, Diversity & Inclusion Seminar: Defining Your Underserved & Underrepresented Patient Population Global Advocacy Alliance Lunch & Learn Equity Diversity & Inclusion Seminar, Part 1 Defining Your Underserved & […] Read more
Diagnosis RAREly Told Stories Workshop Have you wanted to tell your rare disease story as a documentary or a short video? Global […] Read more
Diagnosis Fibrous Dysplasia Diagnosis Inspires Camryn FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright […] Read more
Diagnosis Meet Wiley, an Angelman syndrome warrior by Chloe Knouff Meet Wiley, a vibrant six-year-old who faces life with unwavering determination despite living with […] Read more
Drug Development Beginner’s Guide to Community Activation — RARE Advocacy Summit 2023 As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel […] Read more
Drug Development Spinal Muscular Atrophy Case Study — 2023 RARE Advocacy Summit As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […] Read more
Drug Development Power of Partnering: Rosamund Stone Zander Translational Research Neuroscience Center — 2023 RARE Advocacy Summit As part of the Becoming a Research Ready Organization track from the 2023 RARE Advocacy Summit, this […] Read more
Drug Development 7 Ways to Engage the FDA — 2023 RARE Advocacy Summit As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […] Read more
Drug Development Thinking Like a Researcher: Disease Biology 101 — 2023 RARE Advocacy Summit As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […] Read more