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Showing articles from Caregiving tag

Update from the Community: Caregiver Survey

[Update from the Community: Caregiver Survey][1] from [Global Genes][2] on [Vimeo][3]. [1]: https://vimeo.com/295672628 [2]: https://vimeo.com/globalgenes [3]: https://vimeo.com

Summit Day 1: Opening Remarks and Session 1: Caregivers- Strategies to stay Afloat

[Summit Day 1: Opening Remarks and Session 1: Caregivers- Strategies to stay Afloat][1] from [Global Genes][2] on [Vimeo][3]. [1]: https://vimeo.com/107307089 [2]: https://vimeo.com/globalgenes [3]: https://vimeo.com

Global Genes LIVE!: Engaging Diverse Voices at the Research Table

Hear experts in rare disease research discuss the current landscape of underserved community representation in research, common missteps in engaging with diverse communities, and disparities in access to care and research. Learn about considerations to keep top of mind when developing culturally competent outreach for…

Welcome and Main Session: Rare Disease Updates from the Global Stage

[Welcome and Main Session: Rare Disease Updates from the Global Stage][1] from [Global Genes][2] on [Vimeo][3]. [1]: https://vimeo.com/295607711 [2]: https://vimeo.com/globalgenes [3]: https://vimeo.com

NTM Lung Disease Webinar

Coughing, fatigue, or shortness of breath that won't go away? In partnership with INSMED, we dive into the deeper risk factors, diagnosis, and testing for rare lung diseases during this webinar. Learn from leading specialist Dr. Patrick Flume and patient and advocate Debbie B. about the management of this condition an…

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