RARE Patient Advocacy Summit
_**Please join us for our**_ 3rd Annual “RARE Patient Advocacy Summit_”_ held on **September 11-12, 2014** at the Hyatt Regency in Huntington Beach, California. _**Empowering Patient Advocates to Become Successful ****Activists**_ [Download Agenda][1][ (PDF) ][2][Download Speaker Bios][3] (PDF) Download PDF slides: [D…
Global Genes LIVE!: Navigating the Transition of Care for Young Adult Patients
Hear firsthand from young adult rare disease patients who have gone through the transition from pediatric to adult care. They discuss approaches you can use for yourself or a patient you care for to help make the transition of care coordination from parent or guardian to child more smooth. They also help identify the …
RARE Webinar: Transition of Care: Planning for Care for Children with a Rare Disease
![][1] As caregivers age, preparing for your loved one’s future can be daunting. It may be difficult for both you and the loved one in your care as you both transition into new roles and new chapters in your life. How do you plan for care for your adult child living with a rare disease–both physically and financially…
