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Showing articles from genetic testing tag

Participating In A Clinical Trial: A Step-by-Step Guide for Rare Disease Patients and Families

![][1]This guide aims to provide general information and guidance for anyone affected by a rare disease who is considering participating in a clinical. The journey of participating in a trial can be a long journey towards hope for many people. The process can be complex and people, even people with a scientific and m…

Global Genes LIVE!: From Data to Decisions - Leveraging Genetics Data Beyond a Diagnosis

Will genomic sequencing or genetic testing give you and your family the answers you seek? And what happens when the results come in? In this discussion, learn what types of testing are available for rare diseases and what data or diagnoses they may show. Hear stories from families who have gone through testing and how…

Welcome and Main Session: Rare Disease Updates from the Global Stage

[Welcome and Main Session: Rare Disease Updates from the Global Stage][1] from [Global Genes][2] on [Vimeo][3]. [1]: [2]: [3]:

RARE Patient Advocacy Summit

_**Please join us for our**_ 3rd Annual “RARE Patient Advocacy Summit_”_ held on **September 11-12, 2014** at the Hyatt Regency in Huntington Beach, California. _**Empowering Patient Advocates to Become Successful ****Activists**_ [Download Agenda][1][ (PDF) ][2][Download Speaker Bios][3] (PDF) Download PDF slides: [D…

Searching for A Diagnosis: Colleen Olson

Colleen Olson, Co-Founder and President of the DHPS Foundation, tells how genetic testing helped physicians identify the rare condition that affects two of her three children.

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